- What, in your own words, is human genome project (HGP)? What are its goals? Why is HGP an important part of the evolution of bioinformatics?
- Which legal and ethical issue will you select from the HGP website for further discussion? Why do you believe that the issue you have selected is of high importance for discussion? What are the criticisms or concerns surrounding this particular issue?
- What response or solution does the HGP provide for the concerns and criticisms of the above issue? Do they identify any of their own concerns?
- What role do you think medical informatics professionals should play in addressing such ethical, legal, or social issues?
- What is personalized medicine? What are the different applications?
- What are the legal and ethical considerations for personalized medicine, including HIPAA? What types of standards and interoperability issues must be addressed before adopting?
- What are some of the informatics issues that will need to be addressed in the next ten years?
HGP
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